Local:

• Florida Department of Health Children’s Medical Services (FL CMS): http://www.floridahealth.gov/programs-and-services/childrens-health/cms-plan/index.html
  • Bureau of Early Steps and Newborn Screening: http://www.floridahealth.gov/programs-and-services/childrens-health/early-steps/index.html

• University of Florida:
  • UFPPC – University of Florida Pediatric Pulmonary Center Leadership Training Program: https://pulmonary.pediatrics.med.ufl.edu/education/training-program/
  • UFCARD – University of Florida Center for Autism and Related Disorders: http://card.ufl.edu/
  • JaxHATS – UF Health Jacksonville Health & Transition Services: https://hscj.ufl.edu/JaxHATS/

• University of Miami Miller School of Medicine Mailman Center for Child Development:
  • Professional Development and Continuing Education Opportunities: http://pediatrics.med.miami.edu/mailman-center/professional-development
  • Family Navigator Program: http://pediatrics.med.miami.edu/mailman-center/family-navigator-program

• University of South Florida:
  • School of Public Health Center of Excellence in Maternal and Child Health Science and Practice: https://health.usf.edu/publichealth/mch
  • UCEDD – University Center for Excellence in Developmental Disabilities Education, Research and Service: http://cfs.cbcs.usf.edu/projects-research/detail.cfm?id=314
  • Helping Our Toddlers Developing Our Children’s Skills, HOTDOCS, Department of Pediatrics, University of South Florida: https://health.usf.edu/medicine/pediatrics/child_dev_neuro/hotdocs

• Alachua Co Council of Parent Teacher Associations: https://accpta.org/
• Florida Family Care Council: https://www.fccflorida.org/
• FND USA – Family Network on Disabilities: https://fndusa.org
• Florida and Virgin Islands Deaf Blind Collaborative: https://deafblind.ufl.edu/
• Joe DiMaggio Children’s Hospital: https://www.jdch.com/about/why-choose/patient-family-centered
• Johns Hopkins All Children’s Hospital, Tampa: https://www.hopkinsallchildrens.org/Get-Involved/Family-Involvement/Family-Advisory-Council
• Margika: http://margika.org/#/home
• Nemours Children’s Specialty Care Jacksonville: https://www.nemours.org/content/nemours/wwwv2/services/support/jaxsupport/fac.html
• Orlando Health Winnie Palmer Women and Children’s Hospital: https://www.orlandohealth.com/volunteer-services/orlando-health-patient-and-family-advisory-council
• Purple Playas Foundation: https://purpleplayasfoundation.org/
• Rare Action Network: https://rareaction.org/resources-for-advocates/state-profiles/florida/
• RMTC-D/HH – Resource Materials and Technology Center for the Deaf/Hard of Hearing: https://www.rmtcdhh.org/
• Support4Caregivers: https://www.support4caregivers.org/

National:

• AAP – American Academy of Pediatrics:
  • National Resource Center for Patient/Family Centered Medical Home https://medicalhomeinfo.aap.org/Pages/default.aspx
  • AAP Medical Home Resources: https://www.aap.org/en-us/professional-resources/practice-transformation/medicalhome/Pages/home.aspx
  • Engaging Patients and Families: https://www.aap.org/en-us/professional-resources/practice-transformation/managing-patients/Pages/default.aspx
• AHRQ – Agency for Healthcare Research and Quality: https://www.ahrq.gov/
• AMCHP – Association of Maternal and Child Health Programs: http://www.amchp.org/Pages/default.aspx
• AUCD – Association of University Centers on Disability: https://www.aucd.org/template/index.cfm
• CDC – Centers for Disease Control and Prevention:
  • Health Literacy: https://www.cdc.gov/healthliteracy/index.html
• Family Voices: https://familyvoices.org/
• IHI – Institute for Healthcare Improvement:
  • Ask Me 3(Ask Me 3® is an educational program that encourages patients and families to ask three specific questions of their providers to better understand their health conditions and what they need to do to stay healthy): http://www.ihi.org/resources/Pages/Tools/Ask-Me-3-Good-Questions-for-Your-Good-Health.aspx
  • Patient and Family Centered Care: http://www.ihi.org/Topics/PFCC/Pages/default.aspx
• IPFCC – Institute for Patient and Family Centered Care: https://www.ipfcc.org/
• Lucille Packard Foundation for Children’s Health: https://www.lpfch.org/
• Maternal and Child Health Bureau: https://mchb.hrsa.gov/
  • Title V: https://mchb.hrsa.gov/maternal-child-health-initiatives/title-v-maternal-and-child-health-services-block-grant-program
  • The Division of MCH Workforce Development: https://mchb.hrsa.gov/training/
  • MCH Leadership Competencies: https://mchb.hrsa.gov/training/leadership-00.asp
  • National Survey of Children’s Health: https://mchb.hrsa.gov/data/national-surveys
• NCCC – Georgetown University National Center for Cultural Competence: https://nccc.georgetown.edu/index.php
• NICHQ – National Institute for Children’s Health Quality: https://www.nichq.org/
• NORD – National Organization for Rare Disorders: https://rarediseases.org/
• PCORI – Patient Centered Outcomes Research Institute: https://www.pcori.org/
• PFCC Partners: https://pfccpartners.com/
• Planetree International (Guides healthcare organizations toward person-centered care excellence): https://www.planetree.org/